One of our Canadian researchers delves into the value of patient registries and the specific and unique role that they can play in the treatment, research, and unifications of the rare disease community. Read more about it here: https://www.socialpharmaceuticalinnovation.org/post/the-role-of-patient-registries-in-rare-diseases
Do you think rare disease registries should be funded privately by industry or publicly by the government?
Share your ideas with us below!